BRIAN House children’s hospice says guaranteed funding from the Government would secure its future and improve services.
The Bispham-based hospice, which looks after terminally ill children on the Fylde coast, hosted an event to help shape how children’s hospice services are provided across the country in the future.
Parents of children who use Brian House, carers, staff and representatives from the council, social services, the NHS and other organisations, got together to discuss the most important issues in palliative care.
The event was one of 47 similar meetings held nationally, to talk about the next decade in the care of children with life-limiting conditions, and their families.
The results of the discussion will be sent to the Department of Health for consideration. One of the major concerns to come out of the event, which was held at the Low Moor Road hospice, was the topic of funding.
Julie Huttley, clinical director at Brian House, said: “It’s a difficult time for everybody, including ourselves.
“People felt there should be one pot of money where the funding comes out of, when at the moment there are several pots – for example health, social services.
“The group felt we need core funding for Brian House for at least three years.
“At the moment we rely on voluntary contributions and fundraising money.
“We can’t develop services further because the money isn’t secure year-on-year.
“Funding is a major issue, especially with the current economic climate, and Government cuts in other services will have a knock-on effect on us and our fund-raising.
“If people are out of work, they won’t have as much money to spend or donate.”
She said the other message to come out of the meeting was what a difference Brian House and coordinated services made to local families.
“What we heard from parents was when there is good co-ordination it really does make a big difference.